Wish us luck (and maybe a prayer ) - Page 2

beachenit · 02-28-2005

Ginger,
Best of luck with the testing today.
My thoughts and prayers are with you. I'm sure that he will come through it will flying colors.
Please keep us updated.
May GOD bless you and your family now and always.

Ginger · 02-28-2005

Thanks so much everyone! You guys are so great.

Moondance, yes we'll be at Children's.

Minnjim - prayers for you also! Jorden actually has Tetralogy of Fallot, so he was born with an overgrown muscular area just below his pulmonary valve as well as a very large hole between the ventricles, a misplaced aorta and a severely constricted pulmonary vein. Basically it was very hard for his heart to get any blood to his lungs for oxygen, so it pumped much of it instead throught the hole and back out to the body without oxygen, thus his bluish appearance and lack of energy or stamina. They fixed it all when he was four months old, but the muscular area has grown back and attached itself to the leaflets of his pulmonary valve, making it not work and so they need to open his heart again, cut out the muscle and replace the valve. Basically right now he's again not getting enough oxygen in his blood, and he has a high pressure gradient building in his heart causing his ventricle to grow and his heart to work much too hard.

It's so much easier to talk about it techinically, than to think about it personally!

MikeW · 02-28-2005

Our prayers are with Jordan, you and your family.

beachenit · 02-28-2005

I agree with you Ginger.
When I talk about the disorder that my kids have (2 out of the 3) from a medical standpoint, I can talk away and find it very interesting.
However, when you talk about it on a personal level, it becomes very hard.
People ask me why I smile so much and laugh, because I know that deep down, that if I didn;t I would be crying.
Stay positive, I know everything will work out great.

minnjim · 02-28-2005

Ginger- Nothing worse for a parent than your child having a health problem. You'll be in my prayers, too.

TEX · 02-28-2005

Positive thoughts and prayers from TEX and MRS_TEX. Will be waiting for your update with the good news....

**TeeZet** · 02-28-2005

Quote:

Originally Posted by Ginger

But he did laugh and ask if I'd bring my new camera and be his "paparazzi"...ha!

Wish us luck!

I do wish both of you all the luck available!
You guys take good care of eachother (and a few pics with the new camera)!

Please let us know what happend and support the story with a few genuine "paparazzi"-pictures!

It may take a little longer to get there from across the pond, but positive thoughts are on their way!

Jacko · 02-28-2005

Hang tough Ginger and Jordan and family!

SarahB · 02-28-2005

Lots of prayers! Please let us know how he (and all of you!) are doing!

Critter · 02-28-2005

nothing but good vibes, thoughts and prayers going your way. Please keep us informed.

02-28-2005

Remember Gods little children are strong and toughminded.Jordan will do just fine. Everybody should light a candle while setting at your computer tonite and say a prayer for the whole family. Just lit mine May God Bless

P.S. look toward the north you will see my candle shining up here in packer country

jtm1631 · 02-28-2005

Good thoughts being sent from here. I now how stressful surgery for the parents can be. Continue to stay positive and every thing will go well.

[SOAPBOX] Let me just remind everyone that when someone has a scheduled surgery, a family member that is a blood match is asked to donate blood. It is important for all of us to try and donate blood when ever we can for those people that do not have family members to support them and for those emergencies where blood is needed. [/SOAPBOX]

**denisea** · 02-28-2005

More positive thoughts and energy coming your way from NC. Keep us posted!

SunDowner · 02-28-2005

Many positive thoughts and prayers for you, Jordan and the rest of your family.

Gene & Kat

traci · 02-28-2005

Leasa I will pray that things go well tomorrow and that Jorden gets thru the anesthesia easily! I will continue to keep you, John, Jorden and Kelsey in my prayers!God Bless you all! :p

02-28-2005	#26 (permalink)
Prison Guard Guest Posts: n/a	God Bless Remember Gods little children are strong and toughminded.Jordan will do just fine. Everybody should light a candle while setting at your computer tonite and say a prayer for the whole family. Just lit mine May God Bless P.S. look toward the north you will see my candle shining up here in packer country

02-28-2005	#16 (permalink)
beachenit beachaholic Join Date: Nov 2004 Location: minneapolis, mn Posts: 391	Ginger, Best of luck with the testing today. My thoughts and prayers are with you. I'm sure that he will come through it will flying colors. Please keep us updated. May GOD bless you and your family now and always.

02-28-2005	#17 (permalink)
Ginger none Join Date: Apr 2001 Posts: 10,170	Thanks so much everyone! You guys are so great. Moondance, yes we'll be at Children's. Minnjim - prayers for you also! Jorden actually has Tetralogy of Fallot, so he was born with an overgrown muscular area just below his pulmonary valve as well as a very large hole between the ventricles, a misplaced aorta and a severely constricted pulmonary vein. Basically it was very hard for his heart to get any blood to his lungs for oxygen, so it pumped much of it instead throught the hole and back out to the body without oxygen, thus his bluish appearance and lack of energy or stamina. They fixed it all when he was four months old, but the muscular area has grown back and attached itself to the leaflets of his pulmonary valve, making it not work and so they need to open his heart again, cut out the muscle and replace the valve. Basically right now he's again not getting enough oxygen in his blood, and he has a high pressure gradient building in his heart causing his ventricle to grow and his heart to work much too hard. It's so much easier to talk about it techinically, than to think about it personally!

02-28-2005	#18 (permalink)
MikeW añejo Join Date: Apr 2004 Location: Moorpark, CA Posts: 9,748	Our prayers are with Jordan, you and your family.

02-28-2005	#19 (permalink)
beachenit beachaholic Join Date: Nov 2004 Location: minneapolis, mn Posts: 391	I agree with you Ginger. When I talk about the disorder that my kids have (2 out of the 3) from a medical standpoint, I can talk away and find it very interesting. However, when you talk about it on a personal level, it becomes very hard. People ask me why I smile so much and laugh, because I know that deep down, that if I didn;t I would be crying. Stay positive, I know everything will work out great.

02-28-2005	#20 (permalink)
minnjim lost on fifth Join Date: Nov 2004 Posts: 20	Ginger- Nothing worse for a parent than your child having a health problem. You'll be in my prayers, too.

02-28-2005	#21 (permalink)
TEX añejo Join Date: Nov 2003 Location: Mesquite,Texas Posts: 4,927	Positive thoughts and prayers from TEX and MRS_TEX. Will be waiting for your update with the good news....

02-28-2005	#23 (permalink)
Jacko añejo Join Date: Dec 2004 Posts: 18,980	Hang tough Ginger and Jordan and family!

02-28-2005	#24 (permalink)
SarahB añejo Join Date: Jul 2004 Location: Playa...now Iowa Posts: 2,898	Lots of prayers! Please let us know how he (and all of you!) are doing!

02-28-2005	#25 (permalink)
Critter añejo Join Date: Aug 2002 Location: Cerca de Washington DC Posts: 3,343	nothing but good vibes, thoughts and prayers going your way. Please keep us informed.

02-28-2005	#27 (permalink)
jtm1631 añejo Join Date: Mar 2004 Location: Chicagoland Posts: 2,419	Good thoughts being sent from here. I now how stressful surgery for the parents can be. Continue to stay positive and every thing will go well. [SOAPBOX] Let me just remind everyone that when someone has a scheduled surgery, a family member that is a blood match is asked to donate blood. It is important for all of us to try and donate blood when ever we can for those people that do not have family members to support them and for those emergencies where blood is needed. [/SOAPBOX]

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02-28-2005	#28 (permalink)
denisea Forum Goddess Join Date: Aug 2002 Location: On the road to ruins... Posts: 7,025	More positive thoughts and energy coming your way from NC. Keep us posted!

02-28-2005	#29 (permalink)
SunDowner beachaholic Join Date: Feb 2004 Location: West Virginia Posts: 493	Many positive thoughts and prayers for you, Jordan and the rest of your family. Gene & Kat

02-28-2005	#30 (permalink)
traci añejo Join Date: Mar 2004 Location: Spring Texas Posts: 2,449	Leasa I will pray that things go well tomorrow and that Jorden gets thru the anesthesia easily! I will continue to keep you, John, Jorden and Kelsey in my prayers!God Bless you all! :p