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#91 (permalink) |
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reposado
Join Date: Mar 2004
Location: Colorado
Posts: 1,492
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Trina- much positive energy to you and your family as you make this journey. Take the best that Western medicine has to offer, but as a medical person (I'm an RN) I would urge you to consider alternative therapies. Acupuncture , chiropractic, craniosacral and homeopathy and massage. Not necessarily all of them, but what makes sense and feels comfortable to you. They can make your body strong to help you fight this disease. They can help with pain relief, relief of other symptoms and they can help relax you.
I used to be a straight Western medicine type of person. It wasn't always as helpful as I wanted, and desperation has a way of opening ones mind. Good luck. |
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#93 (permalink) |
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life=playa
Join Date: Sep 2008
Location: Erie PA
Posts: 668
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Angels, I just learned of your illness today and I am sending huge hugs and prayers for recovery. You are the backbone of your family, the most loving mother for those dear children. You just concentrate on getting well. You are a special angel, that is for sure.
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#95 (permalink) |
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beachaholic
Join Date: Jan 2010
Posts: 426
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I finally got to a oncologist and although she is great and doing the best she can to treat the disease she is not schooled in the disease nore is any other oncologist in the area that she has found ( she has been calling to find one for me) . So she is going to treat me with the help of the Mayo Clinic. There is not a lot known about the disease but they are doing research on it at Mayo so we will go there which is very scary as it is over 700 almost 800 miles away from my home and I hate to think of leaving my children again. We will have to drive the trip and were not sure if I can make that long of a road trip in one day so it may take two days to drive it.
I won't have to leave them to long just long enough to see a oncologist and other Dr's at Mayo and get some more test ran and for them to go over my treatment plan with me then they will work with my oncologist at home to treat me. I have had it seems every test under the sun done on me . I did a bone scan this past week and today we got the results that my shoulder/arm area is damaged also and the disease is making the pain worse. I still can not hold down solid foods but I am holding down more liquid with vitiams and they have me on three meds we rotate to keep me from getting ill so many times in a day. I did try some popcorn tonight and will try maybe some eggs tomorrow. I had tried a hard boiled egg a couple days ago and that didnt go to well. Over all I am still in pain and not holding a lot down, The good news is the meds they started me on for my lungs seem to be helping as I am now off Oxygen most of the day and use it 100% at night or naps. It's nice to not be on it every waking moment. We are very hopeful for remission and take it day by day. I dont want anyone worried about me as I will be Ok we just got to get all my treatment ( we already started some) under way and push it in remission. I do have to say emoctionally this has been very rough and I have to remind myself that it's not my fault. It seems like we have lost so much over night but we didn't lose me so my husband says it's worth all we have lost ( ha I'll have to remind him that next time we get into a argument which is not often lol)
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http://www.youtube.com/watch?v=6O7ue4BYxQ4 Our family adoption http://www.youtube.com/watch?v=oG_H4Tk5gJs one year since adoption. My blessings. ![]() Adoption is Love Love is Family Family is Forever |
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#98 (permalink) |
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beachaholic
Join Date: Jan 2010
Posts: 426
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Sometimes I sleep better during the day as nights seems to be filled with nightmares and when I wake up from them they seem so real to me . I really get worried about upsetting my kids or my family because all of this has happened.Our youngest daughter is already showing signs that she is upset at me. Well I don't think she's upset at me per say but at the disease and that I am sick.
I Think her seeing me so sick reminds her of her biological mom and all the times her biological mom would get so ill from drinking and drugs. Although I am not sick due to drugs or drinking at her young age all she See's is I am sick. She's only 11. I do have a good older friend from Church that can come speak with her and a Dr. that did tell her it's OK to be scared and OK to be worried. I think I'm going to ask abut a Counselor maybe from Church come out and speak with us all. I really do like my Dr. she takes her time with me and let me ask all the questions we had and her or her nurse is always just a call away. My husband has only been able to work I think 4 or so days since we got back from Vacation. He did work today which I think was good for him but I hated that I know he worried all day while working also. He is a good Officer thought and is able to stay focused on work which I am glad of. He should be able to start back working more since I am holding a some more fluid down then before and the pain meds is helping the pain a lot. Although I did spend most of my time in playa in the room I did venture out in Canucn more and did a couple tours that was included with Palace resorts I just made sure to take a lot of breaks. The kids did have a blast on the trip and me not feeling great allowed us to spend more time around the resort which I Think was great.I DO have some great memories between sick days so when ever I feel up to it I will do a trip report but it might take awhile to type it all out. After all I have fallen asleep at least 3 times typing this LOL! it still boggles my mind just a couple months ago I was planning a trip of a life time and now were planning a totally different type of trip. Last edited by angels; 07-30-2011 at 06:37 AM.. |
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